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The Little Things, Chapter 1: Chasing Joy

Part 5 of An Unexpected Journey

In the summer of 2018, our middle child (Bay) told us he was severely depressed with extreme suicidal ideation. For almost a year, I woke up every morning dreading that Bay had taken his life while we slept. I was anxious and sad for my child. Time was spent seeking joy: I ran, swam, and did yoga. Friends would walk and talk with me. My husband, youngest daughter and I laughed for many months with the show Schitt’s Creek. As a family we took road trips. Although I didn’t see it at the time, all these things, small as they were, helped me wade through that dark time: I was chasing Joy, but it remained elusive.

A year later, in the summer of 2019, Bay was in a treatment center in Los Angeles, California for his mental health. July began with my husband and I traveling to California together from our summer residence in Muskoka, Ontario. Our eldest daughter was living at home for the summer. Our youngest was at camp a few hours away from our cottage.

We arrived in the City of Angels on July 5; that afternoon we met with our son and his therapist. In that session, our middle childth old us that he was transgender and would now be using the pronouns “she” and “her”. Bay wanted to “come out” to her sisters and grandparents herself. For the time being, my husband and I kept it a secret from most of our family members. When we talked about Bay with our family and friends, she was our son and the male pronouns still applied. My husband and I were trying hard to use the correct pronouns when we talked with each other, Bay, and anyone associated with the treatment center. We also learned that our child was trying to decide on a new name, eventually Bay became Bailey.

Almost every other weekend either my husband or I flew from Toronto to Los Angeles; these trips were solo. However, on August 1, 2019, my husband, youngest daughter and I flew to Los Angeles where we met our eldest daughter who had arrived several hours earlier. This was the weekend Bailey was going would reveal herself to her siblings.

I would have liked this trip to be purely for pleasure; it was the first time our two other children had been to California. We tried to add some fun experiences during our trek out west. The first morning we were in LA, was Friday. Family therapy was scheduled for that afternoon, so we took our oldest and youngest daughters to El Matador State Beach, in Malibu and then to lunch at the Santa Monica Boardwalk.

After our morning and early afternoon out, it was time for family therapy. I don’t remember much of that hour when Bailey came out to her sisters. Also, there is no memory of how she presented her news. What I do remember is my eldest, who was and is very enlightened, was not able to wrap her mind around the announcement that her middle sibling made. My youngest just seemed to absorb the information. I’m sure there were tears and questions, but the memory escapes me.

Although we talked with Bailey every day while she was in treatment, we could only see her Saturdays or for family therapy. On Saturdays, after a morning group therapy sessions at the residence, there was lunch (if we chose to stay). Bailey was allowed to spend time away from the house with us; the break from the center could be a few to several hours.

The Saturday Bailey’s sisters were in Los Angeles was rough. While my husband and I were in our parent group, Bailey’s sisters arrived early, hoping to spend a little time with her. Apparently, she engaged very little with them. After lunch Bailey didn’t have any solid thoughts on what we should do during her time with us.  She had suggested “window” shopping to my husband the previous weekend. I proposed we drive through Beverly Hills and walk down Rodeo Drive, as it is unique to LA. We didn’t plan to buy anything, but I thought it might be fun; this wasn’t the best idea. We spent maybe an hour on Rodeo drive. Bailey went into the stores that we went into.  In the last store, however, I pointed to an outfit and said “Bailey, this outfit would look good on you, because you are tall and thin”.  Within a minute she left the store and joined my husband outside. My 13-year-old later said, she thought Bailey would have preferred to stay at the house.

We drove around LA and had a good sushi dinner not far from the house where Bailey was living.  We thought she appreciated it. After dinner, as we headed to have ice cream, we passed a few teenage couples.  Bailey said, “I really don’t like teenagers”. My eldest responded, “I hate to point out that you are a teenager”. My middle child responded with “Yes, and I don’t like myself”; it felt as though Bailey had relapsed.

Our last day in LA we didn’t see Bailey. Our time to visit with her was over. The rest of us tried to enjoy more of what LA had to offer. We attempted to hike to the Hollywood sign. About an hour and a half into the hike we were extremely hot and didn’t seem to be close to where the hike was going to take us, so we turned back. Besides, there was a three-hour limit on our parking space.

Finishing our hike we decided to try In-N-Out Burger, as none of us had ever been to one: it was very crowded and nothing special…after lunch we went to Venice Beach. The sand was burning hot; because of this, my daughters and I had a clear path to run to the ocean, while my husband waited for us on the opposite side of the beach. We didn’t spend much time on the beach but strolled through the Hare Krishna Festival, walked along the board walk and saw some interesting buildings on our way to the car.

We arrived back at the hotel knowing this was our last night in sunny California. Our moods were anything but sunny, I think we all felt deflated. The next morning, at the airport, my husband, youngest child and I said goodbye to our eldest. The anticipated “family trip” had come to an end with each of us carrying our own burden. Even though we tried to engage in enjoyable activities, the purpose of our trip wasn’t for joy. We were there for love: to support and see Bailey.

I Didn’t Break: Chapter 2 of The Little Things

Part 5 of An Unexpected Journey

In early August, many of our conversations focused around Bailey going to an extended care program before coming home; this would be with the same treatment center. At one point, Bailey said, “the only reason you think I should go is because it is better for you”.  I tried to explain how it would be a good segue from residential care into normal life: we wanted her to have a healthy transition so that she would be in the best place possible when she came home. Frankly, I wasn’t sure Bailey was ready to come home. She had a way of misleading people into believing all was well when it wasn’t….in the end Bailey moved to extended care.

I missed Bailey, but maybe her words “it would be better for you” rang true. Perhaps knowing she was somewhere safe was what I needed to focus on my own healing; it hadn’t occurred to me how the “trauma” from my past had taken a toll on me. Actually, I hadn’t thought of all the hard things I went through as trauma. Late in the summer, as schools were already in session, I realized that running, swimming, yoga and talk therapy were only helping me feel a little better. Were the tears that were always ready to flow partly due to my changing hormones? Mid September was the time when I had my women’s wellness check. Sobbing when I saw my gynecologist of 21 years, my story was told. She put me put me on Zoloft. I also started energy healing along with traditional therapy. The Zoloft calmed the anxiety I felt for my middle child. Energy healing helped me let go of things I was holding deep inside myself.

October began with my mother, husband, youngest daughter and me flying to LA to celebrate Bailey’s 16th birthday. The weather was beautiful! We were staying in a new area of LA. Our first full day was without our middle child. We spent a good part of that day at the Getty Museum.

We picked up Bailey on Saturday morning and she appeared to be doing well. There seemed to be enthusiasm about spending her down time with us: driving around the city; taking in a museum; hanging out and playing cards.

The Museum of Death was the place of interest that we decided to visit with Bailey. Permission was given from the treatment center. In hindsight, this might not have been the best choice.

Her grandmother treated us all to a wonderful dinner to celebrate Bailey’s birthday. One afternoon we brought cake to the hotel. Then our time with Bailey was over for awhile…my next trip was not for a month.

When the leaves on the trees started their transformation from greens to the bright autumn hues, my mindset also began to change. The weekend before Halloween I took a solo trip to visit my eldest daughter, who was a Sophomore in college; this was I knew something had altered for me. I had planned my weekend around long walks with and without my daughter. For a few weeks I hadn’t been running because my knee had been bothering me, so a hotel with a pool had been booked. I arrived on a Thursday night. Friday morning I met my daughter for breakfast. My plans were set for the day: first breakfast, then a long walk to make returns that I hadn’t had time to do at the stores near home. The walk was at least five miles round trip. After breakfast I said goodbye to my adult child until that evening. The day was beautiful and very warm for a fall day in Massachusetts. Enjoying my walk, I was about a mile from the stores when my knee buckled and took me down to the ground. With the pain surging through my knee I sat on someone’s stairs in the middle of Somerville, MA. Eventually the pain lessened. I got up and decided to hobble the rest of the way to Assembly Row. Once I reached the the Mystic River, near the shops, I calmly installed the Lyft App, then went into the stores to return my things. The 2.5 mile walk back to the parking garage where my car was parked wouldn’t be happening.

Although, I was in pain and spent a good part of the afternoon icing my knee and resting, a satisfaction of sorts settled over me: with the exception of not having a great walk, everything I set out to do had been accomplished. An appointment with the orthopedic surgeon was made. Also, I learned how to use a Lyft. The last thing may seem extremely small, but every time I learn something new I hear my dad’s voice in my head: “It’s good to learn something new every day”.

That evening, I met my daughter and her boyfriend, at the university, and walked into town for dinner. Sadly, the dinner was interrupted; it was necessary to talk with someone at Bailey’s treatment facility. Once again, my thoughts were divided between the conversation at the dinner table and my concern for my middle child out west. For the second time, I felt sad that the small amount of time I had to get to know my daughter’s significant other was interrupted. Although I knew my child in LA was going back to in treatment care, my college age daughter and I enjoyed the rest of our weekend together. We took a road trip on Saturday to Marblehead. Sunday we met for brunch, then I made the long drive home in the pouring rain.

Between my weekend drive to Massachusetts and my flight at the end of the week to LA, I was able to see the orthopedic surgeon about my knee. On my visit I was informed that there was “severe arthritis behind each knee cap”. My main question of the doctor was “Will I be able to run anymore?” He gave me a look and said, “What do you think?”. Obviously the answer was “no”. “Just another ending, another thing to mourn”, was my thought that fall day. I had been running for 33 years. I was not old, just 51, but I had known for a long time my knees would give up on me. For so many years I ran through worst things to happen in life. I could’ve railed against the unfairness of this news, along with everything else that was happening/ had happened in my life. Walking through the hard things and stopping to face them was something I knew could be done. As much as it hurt to stop running, I didn’t break. There was pleasure taken in my growth to be able to stand up to the bad; this is how recognizing joy the little things began for me: to take something negative and find the positive…..

A Love Affair with Roses

By Marcia

I don’t remember when I planted my first rose bush. In 1976, I started a garden at our first home in Pennsylvania. My husband and I planted rhododendrons, a weeping cherry tree and a magnolia tree, and I attempted to create a “rock garden”. The garden was a disaster. I was new to gardening and had more enthusiasm than knowledge. I re-purposed the large rocks from the rock garden into a border for my next gardening attempt: a strawberry patch. I don’t remember growing roses at that house.

We built our second home in 1986 on a 20-acre rural property outside of Indiana, Pennsylvania. As my interest in gardening grew and I dug more holes in the yard and planted more beds, my husband delighted me by adding a six-foot chain link fence, around a quarter acre of our yard’ because the deer liked my gardening efforts, too. 

Baba, my Ukrainian-born grandmother, had a bubble-gum pink rose growing in her garden. Both my mother and my aunt had Baba’s roses growing in their yards and my mother gave me a start of that rose. If it wasn’t the first rose I planted in my garden, it was among my favorites for its beautiful, full blooms and its heady rose fragrance. That unnamed rose set me on a path that gave me years of joy and pleasure. 

By 2001, my husband and I had been married for 30 years. He pursued his hobbies on weekends and free time. Our sons were adults and away from home. I guess the time and my emotions were ripe for me to embrace a new pastime, a new ‘lover.’ 

I love roses—their large, colorful flowers and sweet scents. I adore the history of the old garden roses. Some have been grown for hundreds of years. While less lovable, I accepted their thorny canes as one might overlook the less-than-ideal mannerisms in a new love interest. 

In my fence-protected garden, I planted dozens of rose shrubs—one of my lists included the names of 80 roses I bought and planted over the years! I enjoyed walking in the garden and smelling the roses. I didn’t bring too many bouquets into our house—I almost couldn’t bear cutting the blooms from the plants. Reading postings on Internet garden forums, many with photos of beautiful roses grown in others’ gardens, became addictive and fueled my desire to buy more roses. Not only could I read about the plant, eventually they could be ordered via the Internet! How easy was that?! I was obsessed!

It is likely that Baba’s rose was an old garden rose. Most Heirloom roses bloom once a year, usually in late spring and early summer. What is lost by growing a once-a-year blooming rose plant is made up many times by the abundance of the flowers covering the plants and usually a very strong rose fragrance. The scent is what I loved the most about them, however the flowers were very photogenic as well, doubling my pleasure in growing them. 

I grew the “Apothecary’s Rose,” a rose that had been grown in medieval gardens and used by herbalists for various remedies and perfumes. I added a deep pink rose, “La Belle Sultane,” who enchanted me with her frilly yellow stamens against the dark petals. She was named for a French woman Aimée Dubucq de Rivery who was captured by pirates in 1776 at the age of 13 and became a cherished concubine and mother of “Sultan Abdul Hamid the First of the mighty Turkish Empire.” Another rose, “Maiden’s Blush,” was originally named “Cuisse de Nymphe” (translation: “Passionate Nymph’s Thigh”) by the French. Perhaps the English found the original name too vulgar. There are similar stories about the names of some of the other roses I grew. And, of course, I grew Baba’s Rose.

Some fellow rose enthusiasts widely promoted alfalfa tea as a fertilizer for roses. A gardener could make this magic concoction herself. Using a 55-gallon plastic garbage can filled with water, marinate alfalfa cubes in the can over a period of days or weeks. The resulting elixir was extremely pungent (I would say it smelled worse than a neglected livestock barn). Wearing rubber gloves, unless I wanted my hands to smell for days, I used water from the soaked and rotting alfalfa to water my rose plants. I don’t know whether or not it helped the roses. As one might do unpleasant tasks for a lover, it was one ritual practiced during my rose love affair.

While the roses themselves brought me joy, my garden also provided the perfect place to practice a new hobby: photography. With a digital camera, I was able to take photos of my beautiful blooms and the fauna (insects) that enjoyed my roses. That was so much fun and added another dimension to my gardening pastime .

Then in 2003, a deadly scourge entered my little piece of paradise: rose rosette disease (RRD). It didn’t affect people or animals, just my beloved roses. I learned about the disease on gardening forums and the Internet. Sadly, there was no cure for the disease. RRD is caused by a tiny mite that infects the rose with a virus. Symptoms of the disease include deformed stems and flowers, an excessive number of thorns on the canes, and an abnormal number of stems growing from the rose stems. The mite can spread the disease to other roses and eventually kill them. Looking at a rose bush with RRD, it is clear there is something wrong with the plant. The advice was, and still is, to dig out and destroy any rose bush showing signs of the disease.

Each time I found a rose bush showing the infection, the grief I felt was similar to what someone might feel when discovering a loved pet was ill and nothing could be done to heal it; this may sound stupid…after all, it is just a plant! But at that time it was so much more to me. I spent hours in the garden and there was little I could do to help and protect my ‘loves’ from this disease. I was sad and angry when removing those diseased roses. After discovering the disease in my garden, I bought fewer new roses bushes and started adding companion plants to my garden beds. My love affair with roses was on shaky ground.

There were other dalliances with plants that weren’t roses: fragrant peonies (that flopped when it rained which ruined the huge blooms); iris (the iris borer decimated many of my plants); colorful daylilies (vigorous plants that needed divided often—like wrestling with an octopus and requiring the strength of Hercules); clematis with huge flowers but no fragrance (the rabbits liked them almost as much as I did); and flowering perennials, shrubs, and trees. I also had a flirtation with growing plants from seed and participated in a pagan rite by sowing them on the winter solstice (which made the sowing seem a little magical—like a celebration of the “birth of the sun”). The romance was never as strong or as long as my love affair with roses. 

Over time, my garden became too large for me to care for. I began referring to it as my chaotic garden because it was so sprawling, untidy, and unkempt. I continued to find joy in the explosion of flowers during the spring and summer months.

It has been over twenty years since I began my love affair with roses. We moved from Pennsylvania to a much smaller property in the sunny south. I said good-bye to my loves and look back with fond memories. My days of having a huge rose garden are over. My hope is to always grow a few fragrant rose bushes to love and enjoy wherever I call home.

The Little Things: Prologue

Part 5 of An Unexpected Journey

This past November was a difficult….

On the 10th of the month, we received word that a good family friend from Toronto had passed away. She had been in my life since I was very young and was one of my mother’s closest friends. Our families were (and still are) somewhat intertwined in the history we have with one another. I always considered this wonderful woman and her extended clan a part of my family.

A little more than three weeks after our friend died, it became apparent that we needed to help our beloved dog, Murphy, go over the Rainbow Bridge. He was just a puppy when he became a member of our family in August of 2009.  Murphy had a good life and at 14 1/2, our dog was in extreme pain. Everyone knew it was time to let him go, but I wanted just a little more time with him; this wasn’t meant to be. The day before Thanksgiving, with his family by his side, he took his last breath.

I wasn’t ready for either of these losses. The deaths, on top of other things that were happening, made it difficult for me to find joy. I had momentarily forgotten how to rejoice in the simple moments or find the tranquility in something that might seem insignificant.

The Sunday after Thanksgiving, my youngest daughter and I drove north with my mother. We were headed to Toronto to attend our friend’s funeral. My sister, who arrived the day before, was waiting for us at the hotel when we reached the city. In addition to being sad, I was stressed. The traffic was awful (due to road work as well as a Christmas parade). I was afraid we might not make it to the visitation that afternoon. Luckily, all went according to plan, but I didn’t feel any better.

The next morning, being an early riser, I planned to walk to the nearest Starbucks and arrive when it opened at 6 AM.  Around 5:30, I went down to the lobby with my coat and mittens (my hat having been forgotten at home). Coffee was just being set up. I decided not to go to the coffee house but went for a walk anyway. The fresh air would be good for me. The morning was brisk, about 16°F and a light snow was falling. The city was quiet, the roadwork on Bloor Street had not started up for the day. Despite the torn-up streets, there was something magical that morning. With the shops lit for Christmas and the snow lightly falling in the crisp morning air, I felt a calmness wash over me. I walked about two miles that morning, until my ears were unable to stand the freezing weather. That time outside was more than just a good stretch for my legs: with that walk, I was reminded how I learned to find joy in the little things….

Authors Note: Stay tuned for the next segment of this story: it will be released somewhat like an old-fashioned serial.

I Remember

In memory of the victims of PAN AM Flight 103

The fall of my Junior year in college, I left my college in New Jersey to study with Syracuse University in London. I had applied to the Syracuse program because I needed a change from my college, which had begun feeling small.

I wanted to spend a year in London, but was afraid of feeling homesick. I fully intended to meet friends from my hometown and travel during winter break. The Syracuse program gave me the opportunity to extend my stay to a year if I was happy. About two weeks in to my semester in London I decided to stay for the full year.

I loved my time in London. Words can’t describe what a wonderful and exciting experience it was for all of us who studied there. We were young, practically still children, full of hopes and dreams.

34 years ago today the dreams were taken from 35 of my fellow students. The tragedy of Pan Am flight 103 changed all who it touched. For those people who were connected to the disaster over Lockerbie, Scotland: I remember.

Pictures flow through my mind…

Traveling for the first few days of winter break with my roommate, Deirdre

Leaving London 

Traveling to  Amsterdam, Cologne, Munster, Brugge and Brussels

Arriving at the Brussels train station where Deirdre and I would part ways:

She to a family she knew in Belgium, 

I back to London to meet with friends for Christmas.

Liz, at the train station saying “There has been an accident on one of the planes”

Me stupidly saying “was anyone hurt?”

Being told, “Everyone is dead.”

Darkness fell,

Walking from the Syracuse center after laying flowers on the steps…

Being approached by another student “Sarah, thank God…I did not know your last name, there was another Sarah from our program on flight 103.”

Slowly finding out who I had known:

Ken Bissett, who sat next to me on the flight to London and was supposed to return for spring semester…

Miriam Wolf with her vibrant hair and welcoming personality.

The others: Pamela, from Bowden; Turhan; the Cocker twins…

Feeling guilty that I had not been on the plane.

Lighting candles all over Europe, in remembrance for those that had died.

Moving through the dark. Finding light. Letting go of the guilt.

Authors note: I wrote this 4 years ago, on the 30th anniversary of this tragedy, and published it last year as the first story on this blog.

The Twilight Years

unedited

On July 4, 2023 I traveled north and slightly west. Through mountains and valleys I went. As I drove, I noticed the gentle blue Cornflowers, elegant Queen Anne’s Lace and some jaunty yellow flowers that I cannot name. Behind me, our dog sat on the floor of my husband’s truck. Every once in awhile, I would glance over my right shoulder to see how Murphy, my trusty companion, was getting along. The day was hard on him (and me somewhat) as I had to lift him in and out of the vehicle.

I hadn’t traveled any great distance with Murphy since the summer of 2019; that year he was able to jump in and out of my mini van with very little effort. In mid June of this year he turned 14, but his brain told him he was younger. Every time we were at a rest stop on our way to Muskoka, instead of waiting to let me help him in and out of the truck, he tried to jump and do it himself; this made it difficult for both of us. Neither of us thought we would be taking this trip together; my husband was supposed to drive up to our summer home with him ten days after I arrived. At the very last minute, with my car packed, my daughter and I ready to go, I was asked to stay home for a few days. My husband took my vehicle, with all my things, and headed north. Murphy and I were left behind. When I departed 4 days later, our beloved mutt came with me.

For the most part, Murphy slept the whole way to our cottage, except when we stopped for bathroom and water breaks. On the last mile of our journey, as we turned onto the road that leads to our cottage, he sat up. Murphy knew exactly where we were, even after almost four years.

When we arrived in the late evening on July 4th, 2023, the sun was still high in the sky. After unloading and having a bite to eat, I took Murphy on a short walk toward the beach. I thought it would be good for both of us to stretch our legs after the long journey. To get to the beach, there are fairly steep stairs on both sides of a hill.

As we walked, with the moss like a cushion under our feet, I intended to turn back before we reached the steps. However, Murphy (on his long leash), had other ideas and started toward the stairs. Before I knew it, he tried to climb the first step and fell. Again, I thought my companion remembered the boundless energy he used to have: when he would go up and over the hill to the beach. In the little sandy bay our dog would play fetch with a tennis ball, then burry it in the sand. Sometimes he would chase the ducks or join my husband in a kayak.

We have had Murphy since he was a puppy. He was adopted at the end of the summer of 2009. For nine years he joined us on our trips to Canada. For several of those summers, Murphy and I would walk two miles together almost every morning.

However, life and our routine changed: in the summer of 2020 none of our family was able to set foot in Canada due to COVID. Then in the summers of 2021 and 2022, my husband chose not to join us at the cottage and Murphy stayed at home with him. Over a year ago, when I was in Muskoka, my trusty companion started walking slower; at the age of 13 he had entered his twilight years. Perhaps he had passed into his dotage before this, but I hadn’t noticed.

This past July, my husband departed our cottage about a week after I arrived. Murphy was left with my 17 year old and I until my spouse came back at the end of the month. This unexpected time with Murphy was special and important for both my daughter and me. Walks with our dog were shortened to several small strolls every day. We had to practice patience and remember he wasn’t young anymore. Our mutt’s steps were slow and painful, but he kept moving. In Murphy, I saw a reflection of what I might feel like in 25 years: slower movement, achy joints, and the desire to do something that physically I would no longer be able to do…

With the regular short walks every day, Murphy and I finally went on a successful walk to and from the beach. We didn’t stay long, but he played for a few minutes before we trekked back up and over the hill. Just over a week later, my husband took him home.

Murphy’s story doesn’t end here, but it raises the question: how do we know when it is time?

As summer turned to fall, my husband and I traveled up to the cottage to experience autumn in Muskoka for the first time. Murphy came with us. He has become too much responsibility for a busy high school senior to take care of; if something happened to our precious canine while we were away, it wouldn’t be fair to burden our daughter with this…. Although this was our first time seeing the changing of the leaves in Ontario, Murphy has probably experienced his last moments there.

We have been home from our short trip north for about three weeks now. The leaves on the trees are showing the bright yellows, deep reds and the brilliant burnt oranges of Autumn. As the leaves start to fall, I see Murphy stumbling often on our daily strolls, choosing the smooth side of the curb to walk on, rather than the grass. Each step Murphy takes looks excruciating. Every day, for the last week, I’ve asked myself: “When the trees are bare, will our old dog still be with us or will his rest come with the quiet of winter?”. Only time will tell.

My Choice

Today is the 40th anniversary of a surgery I had when I was 15. I am reposting this story (published about 1.5 years ago) because the choice I made helped to shape me; it is personally important that I recognize 4 decades of this significant event.

“Mom, how did you improve your posture?”, my eldest daughter asked me last week.  I looked at her and  smiled, questioning, “Did I improve my posture?”.  She said, “I don’t know, but I know you have tried over the years; improving my posture is my New year’s resolution.”  “Oh,” I said, slightly chuckling to myself.   For over 38 years I have been trying to improve my rounded shoulders, a bad habit, that I may have started because of a choice I made.

When I was eleven, my pediatrician discovered I had scoliosis; this is a medical condition in which a person’s spine curves sideways.  Often people with scoliosis are put in a back brace. My parents took me to an orthopedic surgeon who did not feel that the curve in my spine was significant enough for me to wear a brace. Over the next three years I went to a few different doctors about my scoliosis. By February of 1983, when I was 3 months shy of my 15th birthday, I was told I would definitely have to wear a back brace and possibly have an operation.

The last doctor we went to, Dr. Harrison, recommended two methods for straightening my spine. The method he felt would be most effective was a spinal fusion; a stainless steel rod would be placed along my spine and fuse my spine in a straighter position. If I chose the spinal fusion with the Harrington rod, I would be in the hospital for ten days, wear a back brace for three months, and be out of all sports for six to ten months.

The second method Dr. Harrison recommended was a Milwaukee Brace. This brace would extend from my hips to my chest, with a neck brace that would extend up the back brace (think of the girl that Joan Cusak played in Sixteen Candles). There was one catch to the second method : I would have to wear the brace for four years. At the end of the four years of wearing the Milwaukee brace, there was a good possibility I might still need an operation.

My parents allowed me to make the choice between the two methods. In 9th grade, this was the hardest decision I had ever made.  Giving me the ability to make my own decision was a very empowering gift.  I chose the surgery.

On August 17, 1983 I had the surgery to correct my spine.  I am  told I was in a lot of pain.  I remember none it, except when the nurses stood me up for the first time, and also when I was sick on the morphine I was given for pain.  After eight days in the hospital, my back brace was put on.  I went home the next day.

I wore the back brace for three months. I think this was the hardest part of the whole process. Having always been a stomach sleeper, I had a hard time sleeping for the first few weeks. The brace, made of leather and steel made my body immobile from under my arms to my hips. the only part of my torso I could relax were my shoulders, thus creating a very bad habit that I am still trying to break.

“My Cage”
This is the back brace I wore for three months

Unfortunately, the brace was screwed on.  I, who was used to taking one to two showers daily, was limited to one shower a week. Every weekend, my father would unscrew the brace, and I was allowed out of it for one hour.  I was very fortunate because many people (at the time) who had my type of surgery were not able to have their back braces off for showers. Some people had to wear their brace for six months.

Having been a competitive swimmer from age six to age fourteen, I was not used to being inactive.  After the surgery, I was not able to do any physical activity, except walking, until February 1984.  At that point Dr. Harrison said I would be able to ride a bike and swim, but “I was not to get too tired”.  By June, a month after my 16th birthday, I was given the go ahead participate in everything I enjoyed.

I will never regret the decision I made. Having been given permission to make my own choice helped me grow into the person I have become.

We all have scars, some visible, some internal. All our scars become a part of our story. A physical scar is like a road map to the past; the picture, is the scar that that tells part of the story I just shared.

The Summer Of The Loons: The Beginning

Part 4 of An Unexpected Journey

Unedited 

I hear the loons calling again this summer; that lonesome, haunting cry that only this bird can make. Have you heard it? In the summer of 2019, I heard the mournful wail of the waterfowl at all hours of the day and night; it was strange. I remember this so clearly, it sounded as if the loons were echoing the sadness inside my soul…

Play this video to hear the loon call three times.

Four years ago, at the end of June, my husband and I took our son (Bay) to a residential treatment program in Los Angeles. The weekend was a quick trip out and back from the east coast. We left early on a Saturday morning and came home the next day. Arriving home, exhausted, we had new information. We would need to be out in LA more than we had thought: being physically present was extremely important. Family therapy could be on Zoom, if need be, but it would be beneficial if at least one parent was in person as many weekends as possible. Saturday mornings, in treatment, there was group therapy: first the parents of the residents would meet; then everyone who was in attendance that day would gather for a “multi-family” group. After the second session of “group”, we would have lunch and visit with our child for a few hours. Until the afternoon that we dropped off Bay, we weren’t truly aware that the whole family needed to participate in the healing process.

My youngest daughter was due at camp in Ontario, Canada the weekend after we dropped off Bay. The camp is a little over an hour away from where we spend time each summer. Early in the week, my husband and daughter packed up the truck and drove north and west to our cottage. Saturday June 29th, my husband dropped our 13 year old off for a fun-filled month away from us. The next week I was at home with our dog and two cats. During this time, I looked for the cheapest round-trip flights from Toronto to Los Angeles, booked accommodations, cleaned house, and took some time each morning to run or swim. I was bone tired.

Almost a week later, I loaded the minivan with my bags, said goodbye to our cats and put our dog, Murphy, in the back of the mini van. Driving on only a few hours of sleep, I surprisingly made it to our summer home without incident. That evening, all through the night, and the days following the loons were calling; it seemed they never stopped the their haunting cry…

On July 4th, we left the mournful sound of the loons at the lake. We had an early flight, from Toronto to Los Angeles, the next morning. July 5th, several hours after we left Toronto, we arrived in LA; family therapy was to take place in the afternoon. Once we arrived at the residence, we sat in the counselor’s office with our son. By the end of our family session, we were no longer sitting with our son, but with our daughter; the pronouns Bay was using were “she” and “her”.  We knew back in April that Bay experienced gender dysphoria, not because he communicated this to us, but instead told a doctor in the emergency room; it was written on his discharge paperwork. Until that day in LA, we didn’t really know what that term meant for our child. Gender dysphoria is distress at the gender that was assigned at birth. People who have gender dysphoria are often depressed with suicidal ideation. We were grateful our teenager was able to explain that he was actually a female and share with us the start of his gender exploration. In our minds, Bay was still our son. The pronouns hadn’t changed for us yet ( as reflected in this segment of my story). 

Our middle child wanted to”come out” to his sisters and grandparents in his own way. So, for the time being, my husband and I were keeping a secret from most of our family members. We also learned that Bay was trying to decide on a new name. I told him that when he chose another name I would mess up. The correct pronouns would come with time, when I got in the habit of using them. There were tears all around, but this was our child and we would love and accept him for whomever he was. 

The next day, Saturday, was family visitation. We went to the parent group in the morning; it was extremely helpful to hear what other parents were going through with their children. I am not sure how much I contributed. That summer I could barely get out my words without crying. Bay didn’t want to do much with us on Saturday afternoon. He said he was “annoyed and sick of us”. We were sure he enjoyed his past isolation at home, so connecting with his parents was low on the list. My husband and I felt saddened as we watched the other families and their dynamics; everyone had something they seemed to share: music, games, etc. Bay wanted to do nothing. In the past, Bay enjoyed playing games with us. He was no longer interested. That Saturday, our child really just seemed to wish we would leave. From over 2000 miles, I heard the call of the loon echoing in my mind. 

On Sunday, my husband went back to Canada; I flew to San Francisco to stay with my sister and her family. During my time in Northern California, I was still emailing and talking on the phone to therapists at the treatment center. I recently found two emails I sent that week.

One of these email’s was to Bay’s therapist. Another was to a clinician at the center who’s background work is in gender and sexuality (this man was the reason Bay was here); to protect the counselor’s privacy, I will call him “Khalid”. During the time I was in San Francisco, my sister, a therapist, was a great comfort and I did confide in her. Also, one of my closest friend’s had come to stay at my sibling’s house, to spend time with me. I told her about Bay’s exploration of gender. While I was in the City by the Bay, I was given the space to talk about what was happening in my life or not say anything at all. I chose to share. The loon’s mourning call was softer but still lingering within me.

By late Thursday morning, I was headed back to LA. I met with Khalid on Friday morning. My learning curve about gender identity went way up that day; some of the things I’ve learned have taken place over the last four years.

When I said to Khalid in my email ” I don’t see any feminine qualities in him/her….” I was viewing Bay through the gender standards that society has impressed upon us. 

Late Friday afternoon I had family therapy. Saturday morning was spent at Bay’s residence going to groups, having lunch and visiting. The morning of July 13, Bay came out to to the multi family group; the amount of support and acceptance the people gave her stopped the reverberations of the loons that were so far away.

Sunday morning I left Sunny California and flew to Toronto. I was utterly exhausted, and felt sure that it must be draining to be in therapy and working the healing process everyday. Perhaps this is the idea of intensive therapy: you let negative thoughts and habits flow out of you and try to fill your mind with a more positive ways of thinking and coping.

After six hours on the plane (in addition to all the time before and after the flight), I was finally in my minivan heading north, toward our summer home. I felt the loons circling  my thoughts. I was weeping when friend reached out by text (I was using Siri to read and answer). He asked: “How is your son?”. I answered: “I no longer have a son.”. At that moment I realized I was in mourning. My child hadn’t died, but I was grieving the loss of a “son” and an idea of what I thought my life was like…I arrived late in the evening to our cottage. As I lay trying to sleep, I heard the mournful sound of the loon beckoning me to join it’s cry.

To see Part 1 and 2 and 3 of An Unexpected Journey, follow the links:                                                                            

Part 1: https://tell-me-your-story.org/2022/08/26/the-beginning-an-unexpected-journey-part-2-of-the-summer-that-could-have-been-idyllic/.                                                                                                                           

Part 2: https://tell-me-your-story.org/2023/02/01/on-thin-ice/

Part 3: https://tell-me-your-story.org/2023/07/13/standing-at-the-edge-of-the-world/

Other related stories:

https://tell-me-your-story.org/2022/07/23/the-trip-of-a-life-time-the-summer-that-could-have-been-idyllic/

https://tell-me-your-story.org/2023/06/08/the-last-place-i-wanted-to-go-2/                                                     

Standing At The Edge of the World

Part 3 of An Unexpected Journey

To see Part 1 and 2 of An Unexpected Journey, follow the links: Part 1: https://tell-me-your-story.org/2022/08/26/the-beginning-an-unexpected-journey-part-2-of-the-summer-that-could-have-been-idyllic/. Part 2: https://tell-me-your-story.org/2023/02/01/on-thin-ice/

When I was fourteen, my grandparents took our whole family to Hawaii. On our way to the Hawaiian islands (and most likely on the way home) we stopped in Los Angeles, The City Of Angels, for the night. I remember going out to dinner, with some relatives who lived in LA , near the beach. At some point that evening, we walked on the sand. The water was frigid as we stuck our feet in the waves lapping along the shore. The temperature of the Pacific Ocean, along that part of the California coast, was far colder than even the water we swam in every summer in Ontario, Canada; it was numbing! The quick stop-over in LA was my last time in that part of California for 37 years. 

Being a teenager for most of the ‘80’s, and a 20 something for a better part of the 90’s, I had a very limited view of LA. What I knew about The City Of Angels, I gleaned from television and the movies: either a person came from an extremely rich family or from a dangerous part of town. Los Angeles was the last place I wanted to go!  In 2019, my idea of the type of place LA is, changed dramatically….

By May 2019, it had been 10 months since our middle child, Bay, told us he was suicidal and depressed. Our family had been in crises for almost a year, but Bay had been carrying this heavy weight for much longer. The upcoming summer  was looming over me. I couldn’t watch Bay 24/7, however I felt he couldn’t be left alone for several hours at a time.  Unbeknownst to my family, I had been looking for a residential treatment program for Bay. My searches weren’t fruitful. I knew wilderness was out of the question because Bay didn’t like spending time outside or test his limits physically; a wilderness  program would crush him, rather than help him. I also knew Bay hated the heat, so I was looking north and northeast. 

Then, in late May, Bay’s therapist told us that she had been consulting with a colleague (keeping it strictly confidential) about our son’s long term depression and thoughts of suicide…their recommendation was to have Bay attend a treatment program for mental health, in the LA area, for the summer.The thought of sending my child across the country, and to Los Angeles, took my breath away! However, I was trusting these psychologists to advise us; it was up to us to make the final decision. As a parent, I will do anything I can to help support my children. My son liked the thought of going out west for a summer mental health treatment- not caring about the heat. I wanted him to be safe; if LA was the place for Bay to go, then we would make it happen. 

Being a mother of three children, I felt guilty because I was focusing so much of my energy on just one child. My eldest daughter was home from college for the summer; the weekend that everything started to fall into place with Bay’s summer plans, her boyfriend (of a few months) came to visit. I didn’t spend very much time with either of them and that made me sad. When we couldn’t be there for our youngest daughter, we came to rely on my in-laws (who had just moved to the area) to help support her.

My sister, a therapist in Northern California, helped us vet the treatment program where we hoped to send our son. Summer plans, for Bay, came together quickly. We scheduled the trip to take our son out: my husband and I would leave with Bay very early on a Saturday. Our middle child would be taken to his residential program, early in the afternoon, the day we arrived. My spouse and I were scheduled to return home on Sunday.

June 22, 2019, my husband, middle child and I boarded the plane to LA. When we arrived, on a typical sunny day in Southern California, it was still early morning on the west coast. Bay wasn’t due at the residence until just after lunch. The day is somewhat of a blur. I remember seeing the jacaranda trees for the first time in my life, with their beautiful purple-blue blossoms; going to Target for items Bay forgot; eating lunch, most likely, at my son’s favorite spot: Subway. Then, still having time on our hands, we drove around the area (in the San Fernando valley) near Bay’s residential treatment program; this helped us get a feel for where our child would be. When we arrived at our child’s home for the summer, we were given a tour, signed some paperwork and said goodbye to our son. I tried hard to hold my tears in.

As we got in our rental car, my spouse asked me what I wanted to do. I needed to see the ocean, knowing water helps to sooth my soul. We drove through the mountains; I marveled at the beauty that surrounded us. The views were spectacular as we reached the top of a mountain and headed down to the Pacific Coast Highway. When we reached to coast we got out of the car, walked a little, and stopped to take in the world around us. Despite the views and the water, there was a hollowness in me. My husband and I stood overlooking the ocean, barely touching, each of us holding in our own pain. I felt like we were standing at the edge of the world…

Other related stories:

https://tell-me-your-story.org/2022/07/23/the-trip-of-a-life-time-the-summer-that-could-have-been-idyllic/

https://tell-me-your-story.org/2023/06/08/the-last-place-i-wanted-to-go-2/